Last week was a big week for DanceSyndrome Dance Leader Helen Cherry. She headed to Bristol to work on technical rehearsals for a touring show called Splash! which is a multi-sensory performance event presented by Extraordinary Bodies.

 

Helen, 29 years old from Merseyside, joined DanceSyndrome in 2017, taking part in our unique Dance By Example leadership training course. She really loved the course and when it came to a close she really wanted to continue working with DanceSyndrome and she joined the weekly sessions in Preston with our performance team. Helen has thrived in our inclusive dance sessions, taking the lead female role “Woman” in our 2018 Edinburgh Fringe piece “Lit aDrift” (pictured left).

 

 

Helen, who also dances with DaDaFest, another inclusive arts organisation, is a confident and ambitious dancer and she was keen to audition for Splash! when she heard about it and was thrilled to be offered the role of Flo.

 

Splash! follows the story of Flo, a young woman, and her grandfather on a ‘shero’s journey’. Lost in a magical watery world full of strange sea creatures and underwater perils, Flo learns to take risks, gains independence and confidence, until she finally finds her way back home.

 

In an interactive and sonic water world, the story is told through circus, physical theatre, comedy and puppetry. The show will communicate the story through spoken word, poetry, Visual Vernacular, BSL, audio description, sound boxes and audio technology for deaf audience members. An interactive soundscape surrounds the entire performance space, where audience members are seated, so everyone can be fully immersed, surrounded by texture, sound, movement and colour. A real multi-sensory experience!

 

Helen has been involved in performing art for a long time, having worked with Team Oasis, a dance and drama group in Liverpool for five years from 2005, completing a level 1 qualification in dance at Wirral Met College in 2008 and working as a performer and assistant peer educator at Pilgrim Street Arts Centre in Birkenhead. She has also worked as a TV extra for the BBC, Channel 4 and ITV, including 15 episodes on Coronation Street (pictured left)!

 

When she’s not dancing and performing, Helen loves swimming and other fitness activities, going to see live music and even playing the piano and violin. She’s a very busy lady and we feel very lucky to have her involved with DanceSyndrome!

 

Extraordinary Bodies present new show Splash!
Commissioned by the East Midlands Splash! Consortium and led by The Mighty Creatives.
Find out more here: https://www.extraordinarybodies.org.uk/our-work/splash

DanceSyndrome Founder Jen Blackwell has been shortlisted as a finalist for the HER-abilities Award at the upcoming Inspire Women Awards.

 

The  Inspire Women Awards celebrate the wealth of outstanding contributions women have made to the North West.  It is a night of celebration and achievements of women from all walks of life in the diverse and thriving local community, showcasing extraordinary examples of courage, triumph, kindness, compassion, transformation, skill and success.

 

Now in its fifth year, the 2019 event will play host to heads of industry, business chiefs, community leaders, politicians, entrepreneurs, celebrities and other well-known figures from the region’s private, public and voluntary sectors. Packed with stories of unsung heroes, community champions and women who have gone above and beyond in the course of their work, service and passions, it is sure to be an inspiring event.

 

Jen has been shortlisted as a finalist in the HER-Abilities Award category. This award is reserved for a special woman who despite her disabilities inspires by her positive contribution to the community, workplace, family or just her own life. Embracing HER-Abilities, she may have achieved new success, eliminated limiting beliefs and demonstrated the importance of living a fulfilling life.

 

Jen said “I’m honoured to have been shortlisted for the HER-Abilities Award. Being nominated for this award shows that people with learning disabilities can do amazing things with their lives if given a chance. Dancing is my life, I am passionate about dance and about supporting people like me to have opportunities in the dance world.”

 

Jen will find out if she is a winner at the Inspire Women Awards event which takes place on 22nd June at the Premier Suite, University of Bolton Stadium.

 

More information about other awards that DanceSyndrome has won, please visit the Accolades page on our website. 

David Corr and Jessica Reid perform Los(T)Two dancers from DanceSyndrome have been chosen to perform at a prestigious dance festival in London this summer.

 

David Corr, 21 from Chorley, and Jessica Reid, 16 from Preston, represented DanceSyndrome at the U.Dance North West regional festival in March at The Lowry, Manchester. Working with DanceSyndrome Dance Artists Sophie Tickle and David Darcy, the duo have developed a stunning contemporary dance duet entitled “Los(T)” that was the only one of sixteen performances to be chosen to represent the North West in the national festival, which is held in London in July.

 

 

Each year the U.Dance national youth dance festival showcases a selection of the best dance groups from all over the country in a range of performances and gives the opportunity for hundreds of young people to take part in workshops and masterclasses with dance industry professionals, inspire each other with a love of dance and develop their understanding within the dance sector.

 

Andrew Hurst, Chief Executive of One Dance UK who organise the festival said:

“The U.Dance national youth dance festival is an important event on the dance calendar and we are delighted to be working in partnership with the Imperial Society of Teachers of Dancing (ISTD) to deliver this year’s event. From the regional platforms to the festival itself, U.Dance engages with more than 2,000 young dancers, encouraging them in the pursuit of excellence in dance and embarking on careers in dance, highlighting one of One Dance UK’s key aspirations – to raise the profile of dance teaching and practice in all its diverse forms.”

 

Sophie Tickle, DanceSyndrome Lead Artist said:

“David and Jessica are committed young dancers with real talent. They have worked really hard throughout the process to give a professional and captivating performance. Everyone at DanceSyndrome is incredibly proud of what they have achieved and that they have been chosen to represent us on such a prestigious national platform! They both have a bright future in dance and we know that they will make the most of this incredible opportunity.”

 

To find out more about about our performance work, please visit the What We Do page of our website.

Craig HartleyDanceSyndrome supporter Craig Hartley has published his first novella “A Change of Views”. Craig has kindly offered to donate all proceeds from his book to DanceSyndrome!

 

“The Greek Gods used to be revered by the masses but in these modern times the people had forgotten about them. They needed a change… to move from Mount Olympus. Pan (god of the wild) suggests relocating to Pendle Hill in Lancashire, where they can hide in the frequent mists. A new day dawns for the gods and goddesses of Olympus!”

 

In A Change of Views, author Craig Anthony Hartley has created an atmospheric first novella. Craig is an accomplished poet, performer and now a novelist too, he also happens to have Down’s syndrome. In publishing this book, Craig demonstrates that disability doesn’t have to be a barrier to pursuing your dreams and ambitions! Proceeds from the sale of the book will be donated to DanceSyndrome, an inclusive arts charity that challenges perceptions of disability, instead focusing on people’s talents and abilities.

 

The book is available in Kindle and paperback formats from Amazon:

We are also excited that our own book DanceSyndrome: Living the Dream is also available on Amazon:

 

If you register with Amazon Smile and select DanceSyndrome as your chosen charity, Amazon will make a donation every time you shop via smile.amazon.co.uk

Following three successful months of our new EXTEND and EXPLORE technique sessions, we have made some slight adjustments to the schedule for these sessions based on feedback from participants.

The new schedule, starting from Monday 29th April, will be as follows:

 

Mondays:

Beginners Ballet – 11:15am – 12:15pm

Street Dance – 1pm – 2pm

Jazz – 2:15pm – 3:15pm

 

£7 for one session. £12 for 2 sessions. £15 for 3 sessions.

 

Wednesdays:

Contemporary Dance – 12:30pm – 1:30pm

Create and Connect (creative dance) – 1:30pm – 3pm

 

£7 for Contemporary. £5 for Create and Connect. Both for £10.

 

These sessions are suitable for all abilities and previous dance experience isn’t needed.

 

If you would like more information about any of our dance sessions, please visit the Events page of our website. 

DanceSyndrome TeamIt’s World Down’s Syndrome Awareness Day today, which is also part of Down’s Syndrome Awareness Week in the UK.

 

Several of our dancers happen to have Down’s syndrome and while we always prefer to focus on their strengths, talents and abilities rather than their disabilities, it’s really important that we raise awareness of what life is like for people with Down’s syndrome so that we can overcome myths about the disability and challenge perceptions about what people with Down’s syndrome are able to achieve.

 

Down’s Syndrome Awareness Week and World Down Syndrome Day are an amazing opportunity to challenge our society’s misconceptions about Down’s syndrome and to call for people to work towards a more inclusive society.

 

The focus of this year’s campaign, organised by the Down’s Syndrome Association, is #LeaveNoOneBehind. Every single person with Down’s syndrome should have the same opportunities as everyone else, in every area of life, including:
• Personal development
• Personal relationships
• Education
• Health care
• Work
• Public life
• Hobbies and leisure

 

This week we hope to demonstrate the achievements of some of our dancers by sharing their stories and letting their voices be heard.

 

Here are some videos that we hope will inspire you, if you want to share these on social media you can find them on Facebook, Twitter and YouTube.

 

Jen Blackwell:

Jen Blackwell is the Founder of DanceSyndrome. The charity was started because she found it difficult to find appropriate opportunities to enable her to pursue a career in dance.

Here’s Jen’s story.

 

David Corr:

“A health visitor said to us “Might take him a bit longer but David will do everything his older brother does.””

At 21, David is a Special Olympic Gold Medallist, amazing dancer & cool dude!

 

Pauline Hall:

This is Pauline’s story about the challenges that she has faced together with her sister Christine. They prove that with the right support & opportunities, everyone can follow their dreams!

Becky Rich:

If you meet Becky she’ll tell you disability shouldn’t be a barrier to living your dream. She’s determined to change perceptions of disability & breaks down barriers with inspiring performances.

 

 

We hope you are inspired by their stories and that they demonstrate how important it is that we #LeaveNoOneBehind!

 

For more information about the range of service’s that we offer at DanceSyndrome, please visit the What We Do section of this website. 

This week is Down’s Syndrome Awareness Week, so we invited DanceSyndrome Ambassador and Spokesperson Becky Rich to share her thoughts with us and write her own blog. Here are Becky’s thoughts about her role with DanceSyndrome.

 

I am Becky Rich and I am 28 years old. I am a Spokesperson and Ambassador for DanceSyndrome a dance led charity. I am a Dance Leader too and I take my job very seriously.

 

DanceSyndrome is very important to me because I like to travel and bring joy, happiness, love and entertainment to everybody. I love to spread the word about our work because we have such a positive message and enjoy dancing together so much. Everyone has such a good time in my dance workshops and that is a great feeling that you cannot forget!

 

In this blog, the message that I want to share is this:

 

I have Down’s syndrome and I am proud of it! I have many abilities and we should focus on those instead of disability.

 

I stand up for inclusion. I strongly believe that it is important to be inclusive!

 

I love my dancing family at DanceSyndrome and I love my Dad, Claire and my brother Alex. I love all of you.

 

There is no need for discrimination, only acceptance matters.

 

No one can stop us now!

 

 

If you are inspired by Becky’s passion for her work, find out how you can support our work.

 

You can read more about Becky in this recent story about her winning the Lesley Finley Community Award and also when she was included on the National Disability Leaders List!

DanceSyndrome Founders Jen and Sue Blackwell have been featured in issue 315 of Yours Magazine.

 

In the article Jen and Sue talk about Jen’s childhood, the challenges that they faced together and how Jen’s love of dance led to the formation of DanceSyndrome.

 

You can see the full article “We want to teach the world to dance” here.

 

For more information about Yours magazine, please visit www.yours.co.uk

2018 was one of the busiest years in DanceSyndrome’s history. It was the year we celebrated 5 years as a charity and we celebrated in style with a variety of inspiring performances, national media coverage, several awards/ accolades and our own awards ceremony and party to round it all off!

 

Here we share some of the highlights of this incredible year!

 

 
 

We started the year celebrating having two films shortlisted for the national Charity Film Awards, the films both made it through to the final 10 in their categories and we were absolutely thrilled at the level of interest these films generated in DanceSyndrome’s work!

 

At the start of the year, we also welcomed new trustees Chris Hatton, Chris Robson, Cristina Bowman, Julie Nicholson, Sam Leonard and Samantha Blackburn and Vicki McCorkell to our dancing family, and are grateful for the incredible contribution they made to our 2018 successes. You can read their biographies on our About Us page.

 

March is always an important month for DanceSyndrome as we celebrate World Down’s Syndrome Day and national Down’s Syndrome Awareness Week. It is imperative to us that we communicate our “ability, not disability” message during this time and show that people who have Down’s syndrome have hopes, dreams and talents just like everyone else. In 2018 we worked with the Press Association to create this heart-warming film.

 

Also in March, our dancers took part in a professional photo shoot with Nicola Selby Dance Photographer.  For many of them this was their first experience of this type of photography and we were completely blown away by their professionalism and the way that they performed for Nicola. The resulting photographs are a proud achievement for all of us at DanceSyndrome and can be seen on the Gallery page. We also used them in one of our favourite campaigns of the year, with each dancer sharing their own talents that they wanted to celebrate as part of our focus on #AbilityNotDisability!

It's UN International Day of Persons with Disabilities today and this year the theme is "Empowering persons with…

Posted by DanceSyndrome on Monday, 3 December 2018

 

In May our street dancers DStreet Crew were thrilled to perform at the University of Central Lancashire CVCL Awards, with the added bonus that they were there to see DanceSyndrome volunteer Anna James win the Student Volunteer of the Year Award!

 

Another fabulous performance opportunity came along in May, when Jen and Becky gave inspiring speeches and a performance at the Small Awards in London. They were incredibly well received and we are hopeful to be involved with this wonderful event again.

 

One of the year’s real highlights came in early June courtesy of The National Lottery’s Big Surprise. DanceSyndrome has Big Lottery Fund project which has been running for over a year now and to celebrate the work we do, The National Lottery took our Founder Jen Blackwell to London where she was very surprised to meet her hero Alexandra Burke! This incredible experience was all captured on film and shown on prime time ITV!

 

In July, our Managing Director Dawn Vickers was thrilled to be a finalist in the Business Woman of the Year Award at the Barclays Celebrating North West Women in Business Awards. Dawn is the driving force behind DanceSyndrome and this recognition was well deserved.

 

Also in July, our dancers gave an exclusive preview performance of Lit Adrift, a new piece which was developed especially for the 2018 Edinburgh Fringe Festival. This performance was a very special event for us, presenting the premier performance of a piece that was completely designed and choreographed by our own dancer. The evening was attended by the Mayor of Preston, who met with the dancers after the show and gave them this lovely feedback:

 

July continued to provide special moments, when our team attended the E3 Business Awards and were thrilled to be chosen as winners of the Charity of the Year Award!

 

And then, it was off to Edinburgh! The team had been working hard all year to make the 2018 trip the Edinburgh Fringe a success. As well as starting work on choreographing and performing Lit Adrift way back in January, the Select Team had been involved in making vital decisions about the trip, including how many shows to perform and how to market them. Individual members of the team also took part in fundraising activities to ensure that the trip could be funded. It was a real team effort and that ensured that the trip was a triumph for everyone involved. Liam Armson documented the process on film in this beautiful documentary:

 

Here are the highlights of the Edinburgh performances:

 

We managed a short break following the Fringe performances, but it was back to business in September with not one, not two, but three awards ceremonies to attend! Members of the team attended the  BIBA business awards on 14th September where DanceSyndrome was a finalist in the Third Sector Business of the Year Award. On the 16th September our dancers wowed the audience with a performance at the BBC Radio Lancashire Community Hero Awards. Then on the 26th September  the DStreet Crew  performed a special 80’s themed routine at the EVA award ceremony at Blackpool Winter Gardens,  where Dawn Vickers was a finalist in the Business Woman of the Year category. It was at this event that the DStreet Crew were asked to audition for Britain’s Got Talent a couple of weeks later! And 2018 wasn’t over yet!

 

October saw yet more incredible achievements for DS Founder Jen Blackwell. Jen was named as one of Shaw Trust’s Power 100, a list of the most influential people with disabilities in the UK!  Jen was featured on page 40 of the Power List book, which can be downloaded here.

 

Only a few days later, Jen was also chosen as the recipient of the daily Prime Minister’s Points of Light Award on 25th October. What an achievement!

 

November saw the proud premier of another new performance piece.  Naming of the Pals was specially choreographed to mark the centenary of the end of World War I. This was performed twice on the streets of Preston,  with incredibly positive audience responses.

 

On Friday 25th November we were thrilled to hold our 5th Birthday Party in Preston. The dancers performed some stunning pieces and we held an awards ceremony in which ever member of our team was celebrated for their talents. The evening also saw the official launch of DanceSyndrome: Living the Dream, the first book to be written about the history of our unique charity.

Posted by DanceSyndrome on Thursday, 29 November 2018

 

But the awards didn’t stop there…  DanceSyndrome was announced as one of the 2019 nominees for the Queens Award for Voluntary Services and we eagerly await the outcome of the judges decision on this!

 

And there were still more! Becky Rich was the proud recipient of the Lesley Finley Community Award which was awarded by Disability Equality (NW) to recognise the voluntary work that Becky does to empower disabled people in her local community! Becky was also delighted to be included in the national Learning Disability and Autism Leaders List. She was one of only 15 people in the UK who were recognised as outstanding leaders in the category of Sports, Arts and Entertainment!

 

All of this hard work in 2018 culminated in two very special magazine articles in December. We were thrilled to be included in a special feature in People Dancing’s Animated magazine called “Living the DanceSyndrome Dream” and Jen and Donna made the cover of Care Talk magazine, with a beautiful story about how dance has helped them to become “best buddies”.

 

We ended the year with this lovely message for our Board of Directors from the Select Team (Dance Leaders), it just sums up the year perfectly!

 

Wow! What an incredible year! We are looking to the future now and are excited about the opportunities that 2019 might bring! If you are inspired by the work we did in 2018 and would like to find out more about how you can become involved, please visit the Support Us page.

Established in 2009, DanceSyndrome was the inspiration of founder and Creative Director, Jen Blackwell, who has Down’s syndrome and struggled to find opportunities to follow her dream of being a dancer and dance leader. Director (and proud mum) Sue Blackwell talks to daughter Jen and lead artist, Sophie Tickle about being empowered by inclusive dance:

 

As the standing ovation at a packed Surgeon’s Hall began to calm, DanceSyndrome’s founder, Jen Blackwell and Lead Artist, Sophie Tickle shared an embrace. They could be excused for pinching themselves. Three days of acclaimed performances at the Edinburgh Fringe Festival; a dream come true for them both.

 

Flashback nine years and Jen’s decade-long efforts to forge a career in dance had proved fruitless. Her aim was simply to be a dance leader, to inspire others, to choreograph and to perform. But opportunities in community dance for people with learning disabilities were few and far between, so Jen decided to take matters into her own hands.

 

She set about creating an inclusive dance company of her own where she and others with learning and physical disabilities, as well as other dance enthusiasts, would feel comfortable and free to realise their dancing dreams and ambitions. With steely determination DanceSyndrome (DS) was born.

 

Speaking at City Hall, London last year, Jen reflected on how dancing has enriched and transformed her life: “DS has given me a voice to be heard; I feel valued and respected. I hadn’t experienced friendship in my life and now I have. I have now got real friends through DS.”

 

Today, this unique dance company provides co-delivered, inclusive dance workshops and training from five centres in the North West of England. Winners of the National Learning Disability and Autism’s Sporting Chance award, the E3 Charity of the Year award, Red Rose Award’s Not-for-Profit of the Year and the beneficiary of Spirit of 2012 and Big Lottery grants, the company is now exploring a social franchising model that would enable participation nationwide. Activities in Nottingham and Oldham are the first such offshoots and are already developing an enthusiastic following.

 

Speaking about her experience in dance, Jen said, “It’s the most magical feeling ever in my entire life. DS is giving all of our dancers the chance to lead warm-ups and workshops which they haven’t done before in their lives. They are learning new things and discovering new things, including friendships.”

 

Central to DS’s approach, and critical to future expansion, are the company’s dedicated dance artists, led by Sophie Tickle. So what inspired Sophie to choose to follow the inclusive, community dance path? A graduate in Drama at Exeter University she was inspired by the power of the arts and dance to engage, stimulate and motivate. She was particularly influenced by the Applied Arts module which included working in primary schools, a sixth form college, a young offenders’ secure unit and a pupil referral unit.

 

“When I finished my degree I felt I wanted to use the arts in a different way because I had experienced, first hand, their power to transform people’s lives. It shocked me that people didn’t work inclusively because to me it was very natural and I’d always lived my life inclusively without thinking about it. So inclusive community dance practice was one of the areas that I really wanted to work in as it offers people more opportunities to develop.”

 

The past years have not been without their challenges: “Working with the existing dance artists, I had to learn on the job by listening to the dancers, learning from the dancers and responding to the dancers’ needs and wishes. As we grew and received support from funders I was offered a paid position as Lead Artist.”

 

Sophie recalls how daunting it was to mould together a dance company comprising such great diversity: “We decided to take a step back on our journey and give ourselves time to bond as a company and to look at all these amazing, wonderful people who all had interests, skills and wishes and see how we could bring them all together as a community to engender a sense of team.

 

“DS is unique because it has grown and been born out of disabled people’s ideas of wanting to create a future for themselves.”

 

The expertise developed over the past nine years has enabled DS to create ground-breaking training courses for those both with and without learning disabilities. The Dance by Example training course enables those with learning disabilities to gain the skills and confidence to co-deliver dance workshops and take the role of Dance Leader. This training is also aimed at those who want to support Dance Leaders with learning disabilities – principally carers, friends and family members as well as dance artists keen to gain experience in the area.

 

“Our training recognises that every workshop is different” says Sophie, “there’s no such thing as one size fits all. It’s completely inspired by the dancers and their passions and interests. It could be high energy, fitness-based or a more creative, contemporary, choreographed style, or something in between.”

 

Keen to spread the word about inclusive practice to a wider audience, Sophie has been instrumental in developing the Inclusive Approaches Training Programme: “We want to see many more dance artists who are qualified and motivated to become actively involved in inclusive, co-delivered dance.” The DanceSyndrome training course is designed for dance artists who would like to develop this expertise. Delivered in schools, universities and businesses, its content focuses on how inclusion is important in all areas of life and identifies considerations and adaptations to make practices truly inclusive.

 

So, what advice would Sophie give to a dance artist who may be thinking about becoming involved in co-delivered, inclusive dance? “As a freelance artist it can sometimes feel very lonely and therefore I would say really think about the potential of co-delivery. Having someone to bounce ideas off, inspiring each other, taking different roles within sessions, being able to deal with a difficult situation whilst your co-leader keeps the rest of the group engaged, reviewing the session together are just some of the many advantages of co-delivery.”

 

Are there any regrets about her choice? “No, definitely not! The biggest reward for me is seeing people grow. The changes I’ve witnessed in each dancer are huge. They are confident individuals. They’ve got their own voices. They’ve got their own opinions and they’re not afraid to express them. The scale of the transformation can’t really be put into words.”

 

Fitting, then, that the final word should come from Jen herself on receiving the Enterprise Vision Award for Inspirational Woman of the Year: “DS”, she says, “stands for justice and equality and against discrimination. I won this award for founding the amazing DS dance charity, for following my dreams, for always being focused and never giving up, and for changing other people’s lives. My passion for dance is my life. My life depends on it.”

 

This article, first published in the Autumn-Winter 2018/19 edition of Animated magazine, is reproduced by permission of People Dancing. All Rights Reserved. See www.communitydance.org.uk/animated for more information. Here is a link to the article online: https://www.communitydance.org.uk/DB/animated-library/living-the-dancesyndrome-dream?ed=43892  or you can view the PDF of the magazine layout here.

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