Malcolm Blackwell is the Chair of DanceSyndrome. Malcolm’s daughter Jen and wife Sue co-founded DanceSyndrome in 2009, after struggling to find opportunities for people with Down’s syndrome and other learning disabilities to work in community dance.
Malcolm has over 35 years’ experience of running international manufacturing businesses, giving him an insight into managing change effectively, building teams and empowering people. His recent retirement allowed him to take on the role of Chair as the organisation takes forward an ambitious strategy, Vision 2030. Malcolm’s career, combined with his lived experience of being a parent of a person with a learning disability, uniquely qualifies him to lead DanceSyndrome.
In this blog, Malcolm writes about how rewarding the role Trustee can be and how you can use your own skills to support our work.
How to Make a Difference
By Malcolm Blackwell, Chair of the Board of Trustees, DanceSyndrome
As Chair of DanceSyndrome I’ve come to appreciate that being a Trustee is far more than a Governance role – it’s a deeply enriching experience, both professionally and personally. I have the privilege of being part of an organisation that not only transforms lives but also sets a benchmark for what a vibrant, community-driven charity can achieve.
At its core, the role of a Trustee is about making a positive impact. Trustees are responsible for guiding a charity’s strategic direction, ensuring that it fulfils its mission and adheres to legal requirements. Yet, the experience goes well beyond these responsibilities. Serving on the board has allowed me to channel my professional skills into a cause I passionately believe in, while growing in ways I hadn’t anticipated. It has given me a unique perspective on leadership, inclusion and governance, complemented by a sense of purpose that extends beyond my career.
DanceSyndrome’s impact is profound. Each year, we reach over 9,000 people through our dance classes, leadership training, and performances. The work we do builds confidence, fosters independence, and improves both physical and mental well-being. More importantly, it challenges societal barriers and demonstrates what true inclusion looks like. Being part of this journey has been humbling. I’ve seen first-hand how our programs transform not only the lives of participants but also the perspectives of those who engage with us as audiences, partners, and supporters.
Beyond its immediate impact, DanceSyndrome is an organisation with bold ambitions. We want to upscale our reach, develop pathways for young people with learning disabilities, and create a model that can be replicated nationally and internationally. It’s an exhilarating time to be part of the charity, and the energy and passion of our team make it very rewarding.
Being a Trustee is not a role that demands endless hours, but it does require enthusiasm, a collaborative mindset, and a genuine belief in the charity’s mission. Attendance at four board meetings each year and the Annual General Meeting also gives opportunities to contribute to strategy discussions, working groups, or represent the charity at various events. It allows one to be part of a movement that is creating real change.
DanceSyndrome is currently seeking new Trustees to join our board. Do you have expertise in areas such as Finance, HR, IT, or legal compliance? We are also looking for a Treasurer. However, what matters most is a passion for inclusion and a willingness to contribute your skills to our vision of a fairer, more equitable society where everyone can shine.
I encourage anyone who is inspired by our work to consider joining us. You’ll not only make a difference to the lives of others but also enrich your own in ways you may not expect.
Consider becoming a Trustee with DanceSyndrome and to apply, visit our the Trustee Opportunities page on our website.
Together, we can ensure that everyone, regardless of ability, has the opportunity of a better life.
