Jim is currently Clinical Lead Health Improvement at NHS England, Associate Professor Intellectual (Learning) Disabilities at Kingston University and St Georges’ University of London as well as Clinical Advisor Learning Disabilities NHS England. He is also the Health Advisor at the British Institute of Learning Disabilities and the Learning Disability Advisor to the Sates of Jersey and Guernsey. Jim is currently the Vice Chair of the Royal College of Nursing’s London Board.
Other highlights from his career include Specialist Clinical Advisor to the CQC, Consultant Nurse Learning Disabilities at Great Ormond Street Hospital and Consultant Nurse Learning Disabilities at St.George’s Hospital in London. Jim was President of the Royal Society of Medicine’s council for the Forum on Intellectual Disability and Vice Chairman of Special Olympics Great Britain. He is also an Expert Advisor to the Parliamentary Health Service Ombudsman, an advisor for the Down Syndrome Medical Interest Group and is on the editorial board of www.intellectualdisability.info.
Jim is involved in the movement to enhance and improve care of people with learning disabilities.
Steve is currently the presenter and choreographer of the BBC 2 “Our Dancing Town” and the Artistic Director of Carmarthen Youth Opera, he has also recently been made a proud Patron of the London Ballet Foundation. His most recent UK freelance teaching credits include, MA Musical Theatre Degree at Royal Central School of Speech and Drama, Arts Educational Performance Arts School.
He was also invited by Ken Cazan to teach on the highly acclaimed Vocal Arts and Opera course at the prestigious USC Thornton school of Music, LA. Steve was also awarded a bursary ‘Acting for Others’ from Dance Development Trust. Steve has enjoyed meeting and working with the DanceSyndrome dancers and is excited and honoured to be a Patron.
Russell Hogarth is an Honorary Fellow, Community Ambassador and Entrepreneur in Residence at the University of Central Lancashire.
He is a Fellow of the National Forum for Health and Wellbeing and esteemed advisory member of the British Association of Social workers [BASW] and the Royal College of Psychiatrists. He is the chair and co-founder of the pan University Creative Communities Group and a former company director for the Design in Mental Health Network.
Russell is a trustee for Creativity Works Preston and Appeals Patron, with the Bishop of Liverpool for the young adult and of life network, “LifeNoW”.
Russell is a patron for Direct Transitioning Help. DTH supports members of the Armed Forces and their families to prepare for civilian life.
Russell is a social entrepreneur, philanthropist and University guest lecturer and his expertise as an independent advisor for Community Engagement in Higher Education and his experience in Health and Social care is now recognised both nationally and internationally.
His voluntary and community work has resulted in him attending meetings in the Department of Health Whitehall, the House of Commons, the House of Lords, Portcullis House and the European Parliament.
Russell’s area of special interest is creative teaching as a pathway to inclusion and accessible education and this is highlighted in his book published, with Dr Gayle Brewer entitled Creative Education, Teaching and Learning.
His fellow colleagues admire his great strength, passion and philanthropy and acknowledge the service he has done for the sustenance of humanity.
Baroness Sheila Hollins
Baroness Sheila Hollins was created a crossbench life peer in the House of Lords on 15 November 2010 taking the title Baroness Hollins of Wimbledon in the London Borough of Merton and of Grenoside in the County of South Yorkshire. She is the co-founder and chair of the charity, Books Beyond Words. She is Emeritus Professor of the psychiatry of learning disability at St George’s, University of London; Honorary Professor at the Department of Theology and Religion, University of Durham and President of the Royal College of Occupational Therapists.
Baroness Hollins was President of the Royal College of Psychiatrists from 2005 to 2008. From 2012 to 2013 she was president of the British Medical Association and then chair of the BMA Board of Science. In 2014 Pope Francis appointed her a member of the newly created Pontifical Commission for the Protection of Minors. She also chairs the Scientific Advisory Board of the Centre for Child Protection. In addition to her role as Patron for DanceSyndrome, she is a Patron of Living and Dying Well and RESPOND.
Professor Nirmal Kumar is President for ENT UK (the professional membership body representing Ear, Nose and Throat surgery) and is Consultant ENT surgeon at Wrightington Wigan & Leigh NHS Foundation Trust, UK where he is also Director of Medical Education. Regionally, he leads the ENT North West research network for the National Institute of Health Research (NIHR) in addition to being Honorary Professor at Edge Hill University Medical School where he has led a MCh academic program in otolaryngology. He is a specialist advisor for NICE, FRCS (ORL) examiner of the Royal College of Surgeons, Fellow of the Academy of Medical Educators and until recently vice-chair for Specialist Advisory Committee overseeing training standards in otolaryngology in the UK. He is MD, MCh, PhD examiner for several Universities in the UK and abroad, delivered key note and invited lectures around the world and has published more than 100 peer reviewed medical publications.
Nirmal is keen on supporting the next generation and promoting the talents of young people with particular respect to reducing discrimination based on gender, age, disability or any other protected characteristics. He is excited and feels privileged to be a patron of DanceSyndrome.
Ciara has a learning disability and is passionate about seeing people with a learning disability being positively portrayed in the media, like in TV shows. She has talked at conferences at Channel 4 and ITV and got a meeting at Coronation Street studios to meet with their production team about this as they have an actor with a learning disability in the show.
Ciara is a volunteer for the learning disability charity Sunnybank Trust’s weekly Kites club night for adults who have a learning disability. Ciara is also a Trustee board member for Sunnybank Trust.
In 2019 Ciara had her first ever cervical smear test andmade a video about her experience. Because of this, Ciara is now an Ambassador for Jo’s Cervical Cancer Trust and a Get Lippy Campaign Ambassador for the gynae cancer awareness charity The Eve Appeal. In her personal life, Ciara got married 7 years ago to her husband Mark. In her spare time, she likes going to the theatre to see shows, singing and spending time with her family.
Sian Lockwood OBE
Sian Lockwood is a graduate of Oxford University with a Masters in Social Work Studies. She worked in a wide range of statutory and voluntary sector organisations in the UK and Africa before becoming in 1991 the Chief Executive of a charity in the north of England, provided a variety of community and family based services including Shared Lives. The charity grew and diversified under her leadership, extending its reach to cover more than eight local authority areas and increasing its turnover fifteen-fold.
Sian was elected Chair of NAAPS UK (the network for family-based and small-scale ways of supporting adults and now called Shared Lives Plus) in 2002 and in that role worked closely with UK governments to promote the value of very small localised services and ensured that legislative and regulatory requirements were appropriate and did not place unnecessary barriers in the way of people establishing and delivering local small scale enterprises. She continued and extended this work when she was appointed as the charity’s first Chief Executive in July 2004 and was instrumental in securing recognition by central and local government of the importance of very small community social care and health services to the successful transformation of adult social care.
Sian is the first Chief Executive of Community Catalysts, a Community Interest Company launched by Shared Lives Plus in January 2010. Over the five years since its launch Community Catalysts has worked through a range of local partners (councils, independent providers and third sector infrastructure organisations) to help local people use their gifts, talents and imagination to set up sustainable social care and health enterprises and to support the development of Shared Lives.
Sian was awarded an OBE for services to social care in the 2010 Queen’s Birthday Honours List.
Julie Ward MEP
Julie is a Member of European Parliament and an active campaigner for equal rights and social justice.
She has extensive experience of front-line grassroots work, engaging with people from all walks of life as they try to do their best for their families and their communities often in very challenging circumstances.
Julie was recently involved in an international delegation to Belfast to participate in an all-party discussion about the role of the arts in peace-building processes. This, combined with her knowledge of social justice, equality and community cohesion make her an ideal patron for DanceSyndrome.
“I’m delighted to support DanceSyndrome in all that they do and stand for. Following the premature and preventable death of my youngest child Oliver, I have dedicated my life to campaigning for equal health care for people who have autism and Intellectual Disabilities.
“I have successfully had a petition debated in parliament asking for Doctors, Nurses and allied Health Professionals to receive mandatory face to face training in autism and intellectual disability. This training is currently being developed by NHSE with my continued involvement.
“I have recently moved to Australia with my husband but my campaigning continues to go from strength to strength. I continue to travel back to the UK to present at conferences, medical schools and hospital trusts.
“I applaud DanceSyndrome’s innovative practice where people with a learning disability lead the charge bringing their own unique insights to lead and steer the way, equality and inclusion are a given, and the dance gives everybody a voice to be heard. DanceSyndrome listens. DanceSyndrome is transforming lives, turning heads, people with learning disabilities are living lives hitherto unimagined.
“The DanceSyndrome dancing family offers a community where support and friendship, joy and happiness pervades regardless of who you are.In this environment every person can contribute their own unique assets and talents.
“It is a privilege to engage with the multi award winning DanceSyndrome, to witness the unimaginable fulfilment and pride people with learning disabilities achieve through the dance underpinned by the support appropriate to them as an individual.
I urge you to join me on this extraordinary ride. Every charity needs donors to thrive, and in the case of DanceSyndrome to create a fairer, more cohesive, more inclusive society where every person is valued.
“Oliver’s full story can be found here: www.olivermcgowan.org”
Organisations that have supported DanceSyndrome on their journey, include…
Spirit of 2012
Big Lottery Fund
Arts Council England
The Percy Bilton Charity
Austin & Hope Pilkington Trust
Lancashire Adult Learning
Lancashire County Council
Duchy of Lancaster
Preston City Council
Henry Smith Foundation
Manchester Guardian Society Charitable Trust
East Lancashire Clinical Commissioning Group
Partners & Supporters
Business in the Arts
Colin Mather, Harmony Blinds
Mailbox ETC (Didsbury)
North Lancashire Learning Disability Partnerships
University of Central Lancashire
Hynburn and Ribble Valley CVS
The Bridge Centre, Accrington
My Life CIC